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What Matters: Reflections on Disability, Community & Love

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Janice Fialka

This is the story of Micah, who has an intellectual disability, his community, and his ground-breaking journey to full inclusion in K-12 schools, college, work and life. It is told by Micah, as well as his parents, his sister, friends and colleagues in essays, poems and interviews.

It offers practical strategies to ensure authentic lifelong inclusion, create circles of support, help parents shift from protectors to guides. Micah and his community are mentors on how to honor interdependency, redefine disability, cultivate relationships, and live a meaningful life. A book of hope and practical guidance for families, self-advocates, professionals and all the rest of us---because we all need to be included.


Take into your heart the message embodied in this book and everything else about inclusive education will naturally fall into place. If you read only one book this year, make it this one. It’s the real deal.


- Cheryl M. Jorgensen, PhD
Inclusive Education Consultant


This collection of writings by Janice Fialka, her family, and others captures the evolution of their lives over three decades—lives of adventure, love, laughter and risk taking. With powerful honesty and eloquence, her writing shows us what it means to be fully inclusive, and what it means to be fully human. This collection is an essential toolbox for families and educators who are navigating a world of diverse abilities.


- Dan Habib
Filmmaker, Including Samuel
and an upcoming film featuring Micah Fialka-Feldman



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